Cancer Chronicles
I kept a journal during my 13 months of treatment, and wrote it up as book, hoping to help other women on the long breast cancer journey. I sent the manuscript to a few publishers, who were all very complementary about it, but said I needed a hook to sell it, like being a celeb, or following a special diet, or alternative therapies. So I went back to the drawing board and rewrote the whole thing as a series of very short haiku that boiled the whole experience down to its essence, making it a more universal and accessible experience. I thought I would post them here.
UPDATE: The poem has now been published and you can buy a lovely bound copy here .
I've called the series Peeling Onions
First layer
waiting,
something others did
till now
ring crushed fingers
and a pain so intimate
it stays the heart
doctor speaks, and
timber - my tree
comes crashing down
small word
two syllables
tropic of…
bad news, cold
and heavy as a
sodden blanket
small talk - children? how many?
tongue’s too tied to answer
pale and wan
he stays, watching this
no greater gift
bruised, biopsied
squashed flat
picture it
surely some mistake
surely some mistake
surely some mistake
I’m over here
can see and hear you
but there’s no way back
child, child, my child
loved, protected, planned for
how to tell you?
boobs, breasts
single-breasted
less is more?
peace of mind
lost
mind’s in pieces
incidence is higher
in the left
a middle-aged fact
swallowed the spider to catch the …..
breast from back muscle?
thanks, but no thanks
phone rings off the hook
the jungle drums
at work
shock, denial, rage, acceptance
cornered here at zero
between x and y
run pity’s gauntlet
through lunchtime
canteen tables
can function here
know what’s expected
so no, I won’t go home
keyed in question
stranger, “sister”, survivor -
tell me what’s it like?
shuffle a list
of Desert Island Discs
into Cracking Cremmie Choices
shop for
hospital things find
her looking at the bras
my sister says “it’s not so bad,
he loves you” - the subtext
as ever is “you’ve got a man!”
Second Layer
his hands on the wheel
the pregnant pause -
my pleas, go - just go
birth, death, root canal work,
surgery - if only we
could sub contract
masks and caring eyes
one, two, th…
oblivion
a blur at the foot
of the bed
offers water
what’s that?
kisses on my forehead-
he’s been waiting
alone I unveil
the razor’s slash
so neatly “boned and stitched”
put their gown cum jacket
into the laundry bin
let the shower baptises me
pair bond
pared back to
pre- pubescence
friends visit
funny stories, food parcels
feel the love
tubes trail from below the skin
to a plastic bag
nestling in pink chintz
post-operative high
lesson learned?
nothing’s impossible!
pink gingham PJs,
the look’s lopsided
Oklahoma extra
asleep in a
relaxation class,
success
my roomie’s thirty-three,
a lawyer, no kids
such a cruel disease
the “burst mattress” hair
of my boy bounces up the ward
till he clocks my tubes and freezes
drains run dry and come out
wound feels every cobble
of the journey home
in the back garden
the wisteria’s flowered.
I missed it
oh the tender care
I lavished here -
the illusion of control
dog sniffs my chest
his baleful look
says it all
Third layer
pathology bad
prognosis uncertain
protocol challenging
we’re all here - old, young,
black, white - cancer operates
PR; it’s the Lib Dem of disease
the oncologist has a winning
smile and Wonder Woman looks
- and super human powers?
a year of treatment -
work’s not an option
I’ll get very weak
synthetic tresses,
the smell of Sindy
circa Christmas 1964
a grim wee Rapunzel tale?
good wigs are made from
Eastern European virgin hair
the scar doesn’t show my hair
should re-grow and suddenly
bald men don’t come from Mars
our mirror eyes come to rest
on me in this mullet wig
creasing up we run outside
the chemo suite, all Parker Knoll
and pond skaters - don’t disturb
the surface tension
in the corner, behind a curtain,
talk of side effects -
as more tears fall
“new? I’m with Mum, the last soul
sitting there was riddled with it..”
it’s the only empty chair
it’s like the Blitz, WRVS ladies
dispense tea as the good
and bad get carpet bombed
a wee girl, Mum on a drip,
offers pretend tea
my favourite
hand in hot water,
to make veins oblige, then
chemical cocktail by cannula
a rush up my arm, no real pain
till it reaches scar tissue
and jumps around a little
food shopping high on steroids -
trolley’s groaning,
I’m gibbering
hair’s parting company,
so Debbie shaves it off
before it fully sheds
Debs says baldness suits
me - I’ve got a little head
and we both laugh till we cry
Mum’s mantra, “bare heads lose heat”
but she’s long gone, and
so, Thank God, are balaclavas
cold in bed - replace
my cotton skull cap
and instantly feel warm again
the wound heals
time for a prosthesis, its off
the peg, had hopes for haute couture….
walk up and down with
it lying heavy in my bra
that’s me, I’m fixed
promised a sticky-backed one
when treatment’s over
Valerie S eat your heart out!
a sticky- backed boob
in a Scottish summer -
think midgie Garibaldi
my wig and boob
wait on the dresser
reduced to a music hall joke
twelve cycles, three weeks apart,
knock me back, watch me rise
keep repeating the exercise
from bed I watch
masts of ochre beech toss
but only till I’m sick
spaced out, detached,
here and yet not -
l..e..t..h..a..r..g..y cradle me
busy being ill - appointments, exercises
medication, tests, blood samples,
bureaucrats and benefits
collective memory, tar and feathers
shame and disgrace
I’m sleeping with the enemy
Fourth Layer
Christmas,my son
asks for “normal”
so I cook and collapse
bells bong,
one singer one song
but for how long
dinner at friends
sitting at their table I see
everything I’ve lost
her food parcels get us
through the “middle weeks”
- such acts of kindness
to averted eyes in Tescos
yes I’m mortal -
but not contagious
prayers for my wee heathen soul
are said by
Catholics, Protestants and Jews
my cohort includes
Brenda, Meg, June, Steph,
Joanne, Millie, not forgetting Hope
we lunch in hats like maiden aunts
and for a giggle order
anything that’s smoked
on holiday from chemo,
left arm up behind my head
on a mechanical brontosaurus
keep very still!! not easy
with Jimmy Shand playing
and you all skipping from the room
slow cooking
three thirty second bursts
Monday to Friday for a month
fair skin tolerates
radiation well - a silver lining
after years of factor 38
peeling like an onion -
no not my skin,
my life
the present’s tense - so
from in this dark cocoon I watch
a new take on the past
hairy hundreds, gritty thousands
ice cream slips after four whole licks
story of my fucking life
a blazing row
such a sweet relief
so sick of being saintly
Fifth Layer
more chemo, six to do
scalp’s sprouting baby fluff
Spring’s around the corner
this is chemo lite
so newly won stubble
won’t fall out
arrive to be told
my liver function’s bad
side effect or mets?
another scan
always inscrutable
but I’m brazen now -
“what do you see?!”
breezy nurse opens the
brown envelope, “nothing,
good - next chemo coming up”
chemo equals oral thrush
thrush meds equal lousy liver function
so a new pill in the “party bag”
veins protest
give up the ghost
even practised nurses wince
head patchy, skin itchy,
mouth sore, left eye waters
can’t remember being “well”
all this to stay alive?
frankly cancer
didn’t feel so bad
it’s a car wash, nominal
control as something
vast pulls you through
birthday looms
dates become
too significant
my son breaks down at school -
so glad we told them
so glad they told us
a mother faded out in
a TV cancer ad - presumably
our kids don’t watch
woes tied to a balloon and
watch them float away…
who’s the bastard with a gun?
can’t do group therapy
my beach walk’s always
Millport to their Maldives
I trust myself -
and look where
that got you!
I have definite fuzz
more than a peach
less than suede
son tells me to keep
my hat on - my hairline
looks too butch
watch with fledgling lashes
as people stop and stroke,
my jaggy, stubbly head
he drops me at chemo, afterwards
we do the supermarket run -
routine is all, all is routine
he says let’s just
get through this first
and figure the rest out later
Sixth Layer
my sister won’t meet my eye
can almost smell her fear
she rarely visits
watch, her bum hovers
then she’s off -
a greyhound from a trap
if not for me then at least for mine
- think of all the times
I watched your kids
she says I can’t be helped
I hope to God she’s wrong
finally I say go
and don’t come back,
I’m better on my own
is it the role reversal
she can’t forgive
I’ve ceased to care
four when she was eight
eight and she was twelve
but I grew up
Seventh Layer
an iffy prognosis
five years, ten
always that Gallic shrug
how to go on
to live with intention
after this
that wee girl, the tomboy,
she had promise
doesn’t she deserve a chance
not going back
want out, want off
their gerbil wheel
knowing what they seek
I hate the way
they feel my neck
my new hair’s curly -
poodle tight, seems nothing
stays the same
catch 22 - pension’s payable
provided you’re dying
not if you’re just very likely to
tell them I’m not going back -
I’m done with all that
breathing’s hard but every day
I wash a pane of glass - sowing
tree seeds, a small act of faith
a perfect match, this music,
the strong March light - both so
precise, so sharp, so fleeting
my new digital toy,
sleek and tiny,
makes histograms of light
photograph a spider’s web,
the dog, and me
with poodle hair
Eighth Layer
it takes too many goes
to get blood from this stone
today they almost used my toe
the end should be in sight
but abysmal bloods mean
the tape keeps shifting
what will it be like
not to do this anymore
can’t imagine
June’s good advice
on life, on trouble
“detach, detach, detach….”
finally it’s over
finished
done
cake and smiles
nurses wish me luck
thank you, thank you all so much
three month check-ups
then 6, then 12 - in between
“symptoms will be investigated”
our dogs introduce us in the park
she’s lost the right, me the left
we make a funny pair
her name is snow in Spanish
she has a warm heart
I have another sister
we share dark-haired
sons,ginger mongrels
and breast cancer
now the hard part,
to love, trust, risk,
live, for the better
16 Comments:
Thank you for allowing me to read 'Cancer Chronicles'. I think the way you have written it is brilliant and completely absorbing.
If a publisher doesn't find that enough of a hook they must be mad.
Please accept my sincere wishes for all to be well. As a would be writer I admire your spirit and your gutsy reaction to a rejection.
Pat
Thanks Pi, very kind of you to read it and to comment. After cancer nothing scares me, it's just someone's opinion, I don't have to accept it. Woman's Hour was interesting today, it was about whether we're all now too open about things, but I think breast cancer is such a huge journey of self discovery that it really does help if you can share your experience with others.
Hi - stunningly open piece of writing.
warm wishes
Dave
Thanks Dave, very kind of you to say so.
This is really beautiful. That's the only word I can think of.
Thanks NWM
Thank you both for your comments. John I especially appreciate yours as I know how much of life you see every day, and yet you remain a very compassionate man and doctor. I've been published by a local venture on a small scale see here:
http://www.scottish-pamphlet-poetry.com/index.cgi?publisher=55
Heartfelt and touching and so honest, it has me weeping!!
I too think there must be a place for this. - Imagine the gall of them to think it needs a hook -
a celebrity for gawd's sake!
keep well!
I am a male...not that protects us from anything except probabilities. My love's 8 burns into the 3rd cycle of "treatment:" slash--poison--burn.
A year of this, you know. She hated the hair...loss. But the peripheral neuropathy was nearly unbearable. It remains though the poison's gone. We teased about the coy prepubescence of it; we wept about most every thing else. Her (our) boys (adults) were a wonder of care. (What went right?) In the midst of it there were kidney stones: God, what an awful week. And, honestly and selfishly, watching these men, doctors, each of them good, fondle what I could not touch, put my lips to. 1 in 7. It hurts to live. O how I wish that was a sentence in theology rather than a sentence.
thank you
agd
Thanks Anna. It's been a healing thing to do. I cried writing it, but it also helped me isolate the experience and start to deal with the various aspects of it. I think initially my pride was mightily offended at getting sick, and, as it seemed to me at the time,being pitied. I've also been a strong individual who sorted things out for myself, so cancer was a very big shock to my sense of myself, and I hated being "processed" even if it was saving my life.
Dafath, I hear you. I think partners suffer hell too. I felt so guilty inflicting my illness on my family and still do to an extent.
am sorry about the sense of guilt; is too bad.
obviously i do not know your partner.
but there is no moral violation to the innocent vulnerability of being human...we age, we get ill...we...weep.
i felt many things
but priviliged to have had a relationship with a history which allowed care to be given and received only with regard on the one hand and gratitude on the other.
the c was hard enough. please dont feel guilt about it.there is no logical or moral correspondence between circumstance and condition,
between our physical condition and the state of our soul
only that we are human.
i am aware of the constant indignities, etc. etc. you had to endure, the exposures, the proddings, etc. all to good end, but all still insults and reminders.
sorry for my overbearing comments.
Dafath there's no need to justify yourself, I didn't take any offence at all, I was just touched about how connected you felt to your wife, on every level, including the physical.
And yes the invasion and prodding, especially getting bloods done, when my veins had collapsed was the most distressing thing, especially for someone who has always considered themselves to be strong and well. My pride was mightily offended. Cancer is fairly random, but I think you try and protect the people you love, and then illness strikes, and it's a double whammy, one the illness, and two the realisation that it is folly to think you can truly protect anyone or thing.
BW
Anna
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I could read your writing for days, your voice and spirit has a way of reaching the soul. Thank you for sharing this, I will definitely be re-directing many towards your sites. Wish you the best of luck on all your works and projects.
Angela
Thanks Angela. I love your writing too, I think you are very talented indeed.
its interesting and well judged analysis is reflecting in this writing.
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